Rare Disease patient advocates & Orphan drug developers joining BioPharma Asia 2016

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The World Orphan Drug Congress Asia is now a part of the 9th Biopharma Asia Convention. Pharma, government representatives and rare disorder patient advocates will now be gathered under the same roof to discuss on strategies to cater to the needs of minorities by building a more transparent orphan drug policies in Asia.

Asia Pacific Alliance of Rare Disorders Organisations (APARDO), a newly formed patient advocates group which represents rare disorder patients is our supporting partner for this event. Here are some sessions which you will not want to miss out:

  1. 22nd March, 2.00pm -5.00pm, Workshop on Improving access to care and treatment for rare diseases in APAC via cross-sectoral collaboration
  2. 23rd March, 11.40am-1.00pm, Presentations and panel discussion on Rare disease policies
  3. 23rd March, 2.30pm-4.00pm, Latest orphan drugs research showcases
  4. 23rd March 4.00pm -4.40pm, Roundtable discussions on Building a stronger voice in encouraging orphan drug policies formation

Representatives from Center for Drug Evaluation Taiwan, Centre of Regulatory Excellence (CoRE) Singapore, Shire, PRA, Actelion, ASLAN, Novogen will be joining us along side with patient advocates from Indian Alliance of Patient Groups, Behcets Syndrome SocietyInternational Pemphigus & Pemphigoid Foundation.

About BioPharma Asia Convention 2016

9th Biopharma Asia Convention is happening on 22nd to 24th March 2016 in Singapore. This is the most important B2B platform for stakeholders rom the entire bio- and pharma value chain in Asia. Book your seat now to save more!

About Asia Pacific Alliance of Rare Disorders Organisations (APARDO)

APARDO is the new alliance for the Asia Pacific region and after several years of preliminary work it was formally launched at the Orphan Drugs Congress in Singapore in June 2015. There are many aspects of policy, culture, regulation and levels of development that make it vital for rare disease action plans to be sensitive to and responsive to local and regional issues. APARDO will work to boost rare disease policy and action plans in the region not by trying to “transplant” ideas from the developed health systems, but more by “translating” those ideas and actions into relevant themes for countries in this region. Though APARDO does not yet have a website active, you can read about its development in an article in “An Asia Pacific Alliance for Rare Diseases” published in The Patient. Access the article here

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